An initiative by ZonMw and patient organisations
The Kickstarter responds to the growing need among researchers for a clear, step-by-step plan to enable them to get off to a smooth start with patient or client participation. The tool was developed behalf of the Dutch organisations ZonMW, KWF Kankerbestrijding, Alzheimer Nederland, De Hartstichting and Harteraad. In three projects, researcher Simone Harmsen analysed experiences with the Kickstarter in practice. She described her findings in her PhD thesis: ‘Structurally embedding patient involvement in the health research system (opent in nieuw tabblad)’. Read more about how the Kickstarter came about below.
We have made every effort to translate the Kickstarter texts accurately into English. You may still come across the odd reference to Dutch-language texts. If you have any questions, please do not hesitate to contact us.
Justification
Read more about the creation of the Kickstarter, researchers’ contributions, the theoretical underpinnings and how the tool was evaluated.
Get started
1. Determining whether involvement is possible
How to involve patients, even when this is not obvious.
3. Finding the appropriate experts by experience
Find the right match between research, researcher and patient representative.
4. Meeting terms and conditions of the funding bodies
The requirements set by funding bodies during the award procedure vary considerably.
Proefschrift Simone Harmsen over patiëntenparticipatie en Kickstarter
Wetenschappelijke publicatie
Onderzoeker Simone Harmsen analyseerde drie participatietrajecten en de Kickstarter voor onderzoekers.